Advocacy Action Alert: Act Today
On April 1, the CDC’s Division of Blood Disorders and Public Health Genomics underwent major staff cuts. Additional permanent employee terminations expected in the next sixty days. These experts have played a vital role in research, public health programs, and data collection for our community.
We are deeply concerned about the impact this will have on the bleeding disorders community. These cuts will impact Hemophilia Treatment Centers, key research initiatives, the National Bleeding Disorders Foundation (NBDF) grant programs, and chapters like ours.
We need your help! Join us and NBDF by reaching out to your federal elected officials to protect these essential programs. Use the script below to get started.
To find you your Senator or Representative’s contact information, click here.
Sample Script
Dear [Senator or Representative],
I am [calling/emailing] as a member of the bleeding disorders community and as your constituent to ask that you protect the federal hemophilia programs at the CDC. The recent HHS restructuring eliminated essentially all of the staff at the CDC’s Division of Blood Disorders, where the hemophilia programs are housed. These programs:
- Help to collect important data on bleeding disorders which in turn helps lead to new and more effective treatments.
- Provide funding for education and outreach to increase patient and provider understanding of hemophilia.
- Help to protect the safety of our nation’s blood supply.
I am relying on you, as my elected official, to take action to ensure that the staff for this program are reinstated and to protect the funding for this critical program.
Thank you,
[Your Name]
