Join us on Wednesday, February 28 at 7 PM for a webinar that will transform the way you think about research and the impact it can have on your life […]
Join bleeding disorders advocates from across New York State for Albany Days from Saturday, March 16 to Monday, March 18. Whether you are new to advocacy, or you’re an experienced advocate, [...]
On Tuesday, January 30 at 10 AM, the NYSDOH – New York State Health Department is hosting a webinar to explain a new option for health insurance that is now […]
Take 10 Seconds To Make A Difference Last year, lawmakers banned accumulator adjusters in New York! This bill, while incredibly important, only protects patients and families on NY ACA [...]
Attention all New York Medicaid, Child Health Plus, and Essential Plan enrollees: you MUST take action to renew your health insurance! New York state resumed eligibility reviews on February 1, [...]
Join bleeding disorders advocates from across New York for Albany Days from Saturday, March 18 to Monday, March 20. Whether you are new to advocacy, or you’re an experienced advocate, you [...]
Applications to attend the National Hemophilia Foundation’s Washington Days will be accepted until Monday, January 30! Washington Days will be held from March 8 to March 10. This is an […]
On November 22, 2022, the U.S. Food and Drug Administration (FDA) approved the first gene therapy treatment for hemophilia! Hemgenix is a one-time gene therapy product given as a single […]
We’re building strong support in the New York Assembly for the copay accumulator bill, but we need your help! Take 60 seconds to fill out our quick and easy to use form […]
