Are you a young adult interested in advocacy and making a difference? Sign up for HFA’s 2022 Young Adult Advocacy Summit! If you are between the ages of 18 and […]
Northwell Health Community Relations, Cohen Children’s Medical Center, and The Northwell Health Institute for Nursing have partnered to host an informative educational and clinical series to [...]
NHF’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. In 2021, Washington Days had more than 400 […]
The Virtual Regional Education Advocacy Development for Youth (READY) Teen Retreat is a free leadership program that teaches teens the ins and outs of advocacy and gives participants the [...]
Join the New York State Bleeding Disorders Coalition for Virtual Albany Days as advocates from all over New York State mobilize and advocate in support of several key bills. Individuals […]
Virtual Albany Day The New York State legislature is reopening for just a few days and we need your help advocating at our Virtual Albany Day! Join us on Tuesday, July 21 for […]
NYCHC Stands United Against Injustice and Inequality. As a rare disease patient organization, it has always been our role to speak up about health inequity, and fight to eliminate barriers […]