Invitamos a los adultos de nuestra comunidad latina con un desorden de coagulación a disfrutar un almuerzo y una sesión educativa en Español el sábado 22 de Febrero en el restaurante […]
El Chapter de la Hemofilia de NY (NYCHC) está organizando una sesión educativa en español para la comunidad latina con un desorden de coagulación para el martes 4 de Marzo a las 7pm vía zoom. Esta sesión es presentada por Novo Nordisk. Después de la presentación, haremos una canasta con flores de tela, preparándonos para la primavera! […]
The National Bleeding Disorders Foundation (NBDF) Washington Days will be held in Washington, DC from Wednesday March 5 to Friday, March 7. This is an excellent opportunity for you to share your story with your elected officials and their staff while also asking for them to support policies that are important to the bleeding disorders […]
Join us on Sunday, March 9 at 11 AM at the NYCHC Office (entrance located at 205 W. 37th St., New York, NY 10018) for lunch, an educational presentation, and a St. Patrick's Day themed craft. The event will include: Educational Presentation: The educational presentation will be held in English and is presented by Novo Nordisk. Lunch: will be […]
Join bleeding disorders advocates from across New York State for Albany Days from Saturday, March 15 to Monday, March 17. Whether you are new to advocacy, or you're an experienced advocate, you can help us make a difference! This three-day program will feature a fun and interactive advocacy training on Saturday and Sunday followed by meetings […]
Wondering if camp is the right fit for your child with a bleeding disorder? We’re here to help! Join us on Thursday, March 20, at 6 PM for an interactive webinar all about camps in the bleeding disorders community. Our presenters, Dr. Julia Golier, psychiatrist, and Dr. Regina Legere Buccellato, psychologist—both NYCHC Board Members and […]
Join us on Sunday, March 23, from 11:30 AM to 2 PM for our Infusion Training and Lunch at the NYCHC Office (entrance is located at 205 W. 37th St., New York, NY 10018). This small gathering will feature hands-on infusion and injection instruction and guidance from trained medical staff. Patients of all ages and skill levels are […]
The Hemophilia Federation of America (HFA) is heading to Indianapolis for their annual Symposium in sunny San Diego from Thursday, March 27 to Sunday, March 30 at the Sheraton San Diego Hotel & Marina in San Diego, CA. They will have dozens of sessions for blood brothers, blood sisters, children, parents, caregivers and more, along with […]
Our 5th Annual In The Know Treatment Decision Making Summit will be held on Sunday, April 6 from 10 AM to 2:30 PM at the NYCHC Office (enter at 205 W. 37th St., New York, NY 10018). With treatment options changing rapidly for our community, and some newly-approved options now on the market, it is extremely important for […]
Bring your crew to the Zoo for a roaring good time! Join us for a fun day at the Bronx Zoo on Sunday, May 4, beginning at 11:30 AM. This event will allow families to come together to meet one another and connect in a relaxed and laid-back environment. Agenda Overview: 11:30 AM: Arrival & Check-In | […]
