MyALPROLIX Peer Dinner

Nino's Restaurant 1110 Hylan Boulevard, Staten Island, NY

Looking for insights from someone with experience on ALPROLIX?  Join us for an interactive educational experience and meet a MyALPROLIX PeerTM — a patient or caregiver who will share what it’s been like for them. Together we’ll review important information including clinical data, the science behind ALPROLIX, and support resources. Speakers include: Michelle M., MyALPROLIX Peer […]

TORCH Teen Retreat

PEEC 538 Emery Rd, Dingmans Ferry, PA, United States

NYCHC's TORCH Teen Retreat Friday, Sept 21- Sunday Sept 23 NYCHC is going on it's next TEEN RETREAT! The TORCH Retreat will be held September 21-23, 2018 at the Pocono Environmental Education Center (PEEC), a short 2 hour drive from NYC in the Delaware Water Gap region. Staff includes NYCHC staff, a nurse, young adult […]

Free

NYCHC Open House

NYCHC Office 500 7th Avenue, 8th Floor, New York, NY, United States

Transition Ignition

Monahan and Fitzgerald's 21417 41st Avenue, Bayside, New York

Fiesta Spook-tacular!

48 West 25th Street, 10th Floor 48 West 25th Street, 10th Floor, New York, New York

Navigating the Changes in Healthcare/Navegando los Cambios en el Seguro Salud

Tosca Marquee 4034 East Tremont Avenue, Bronx, New York

This bilingual talk will provide insight into the changes in insurance coverage, specifically navigating New York Medicaid. Attendees will also have the opportunity to share their experiences and situations in order to best prepare for a shifting landscape. This presentation and dinner are generously sponsored by Shire. Esta charla bilingüe proveerá información sobre los cambios […]

Factor in the Family: Women and Girls Can and Do Have Hemophilia

Mario Restaurant 644 Vanderbilt Motor Parkway, Hauppauge, New York

Join us for Factor in the Family: Women and Girls Can and Do Have Hemophilia! Women with hemophilia B don't just face unique bleeding challenges - getting the right diagnosis […]

Cracking the Code (Bioverativ)

The Stone Manor 101 Saw Mill River Road, Hawthorne, NY, United States

Ever wonder how DNA works? We’ll discuss the basics, including the ways it makes us unique, where it resides in our bodies, how it can affect our health, and the relationship between DNA and hemophilia. Recognizing that we are not all scientists, we’ll breakdown these complex elements into concepts we can all comprehend. All ages are welcome […]

Free

Fall Family Cruise

Pier 61 New York, NY, United States

NYCHC and the VWD Committee bring you another awesome Fall Family Cruise! This year our Inhibitor Committee is joining in on the fun. Join us on the Hudson River for family fun, food, and amazing views! Tickets are $35 (retail value $70) - Ages 13+; Kids 12 and Under: $15 Tickets will be sold on […]

$35

Parenting with a Chronic Condition (Bioverativ)

F & J Pine 1913 Bronxdale Avenue, Bronx, NY, United States

Whether we like it or not, uncertainty can be a part of life when it comes to living with a chronic condition. For parents with bleeding disorders, there are unique challenges that can directly impact family life. These parents may have a lot of questions, such as: How do I talk to my kids about my condition? Is […]

Free

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