Join us for Factor in the Family: Women and Girls Can and Do Have Hemophilia! Women with hemophilia B don't just face unique bleeding challenges - getting the right diagnosis and treatment can be an uphill battle. This program will help all community members advocate for girls and women who have a bleeding disorder, understand the […]
Ever wonder how DNA works? We’ll discuss the basics, including the ways it makes us unique, where it resides in our bodies, how it can affect our health, and the relationship between DNA and hemophilia. Recognizing that we are not all scientists, we’ll breakdown these complex elements into concepts we can all comprehend. All ages are welcome […]
NYCHC and the VWD Committee bring you another awesome Fall Family Cruise! This year our Inhibitor Committee is joining in on the fun. Join us on the Hudson River for family fun, food, and amazing views! Tickets are $35 (retail value $70) - Ages 13+; Kids 12 and Under: $15 Tickets will be sold on […]
Whether we like it or not, uncertainty can be a part of life when it comes to living with a chronic condition. For parents with bleeding disorders, there are unique challenges that can directly impact family life. These parents may have a lot of questions, such as: How do I talk to my kids about my condition? Is […]
The 2017 Gala is an experience not to be missed! This year, the NYCHC Gala will be held at the JW Marriott Essex House's Grand Salon. The historic art deco building is on Central Park South and is one of the most elegant buildings in New York City! This year, we are honoring Bradley Shoenfeld […]
Tis the season for learning and festivities with NYCHC! Join us at our 2017 Education Day and Holiday Party! Featuring: Adult Sessions in English and Spanish on: ++ advocacy and healthcare updates ++ pain management ++ women with bleeding disorders ++ inhibitors ++ aging with a bleeding disorder ++ clinical trials and new treatments Teen […]
¡El Comité Latino NYCHC quiere celebrar el verano con ustedes! Únase a nosotros en la Gran Colina (Great Hill) en Central Park el domingo 5 de agosto a las 12pm […]
NHF's 70th Annual Meeting will be held in Orlando, FL on October 11-13, 2018. Registration for Annual Meeting will open on February 1, 2018. Check back for registration details and more information.
Calling all DREAMERS and BIG PICTURE THINKERS! Innovation Bootcamp starts JANUARY 23, 2018! Join us for an interactive workshop about simple tools innovators use to unleash inner creativity and solve […]
We've partnered with the team at Brooklyn Boulders-Queensbridge to bring kids a climbing adventure! Rock climbing is an excellent way to exercise joints, stay in shape, and challege yourself physically and mentally. With the safety of certified belay instructors, your kids will be able to climb their way up the walls and stretch their limits! […]
