You and a family member or caregiver are cordially invited to join us for Common Connections: An AFSTYLA Story! Wednesday, September 06, 2017 Check-in 5:30 PM - 6:00 PM Presentation […]
Join us for Common Connections: An AFSTYLA Story! Thursday, September 7, 2017 Check-in 5:30 PM - 6:00 PM Presentation 6:00 PM - 7:00 PM Zuppa 59-61 Main Street Yonkers, NY 10701 Featuring: Dawn Hezel, RN, MS, CPNP/CPHON Four Seasons Medical of Western New York Buffalo, NY Hector Grisalez Cicero, IL This program offers you and your […]
Looking for insights from someone with experience on ALPROLIX? Join us for an interactive educational experience and meet a MyALPROLIX PeerTM — a patient or caregiver who will share what it’s been like for them. Together we’ll review important information including clinical data, the science behind ALPROLIX, and support resources. Speakers include: Michelle M., MyALPROLIX Peer […]
NYCHC's TORCH Teen Retreat Friday, Sept 21- Sunday Sept 23 NYCHC is going on it's next TEEN RETREAT! The TORCH Retreat will be held September 21-23, 2018 at the Pocono Environmental Education Center (PEEC), a short 2 hour drive from NYC in the Delaware Water Gap region. Staff includes NYCHC staff, a nurse, young adult […]
This bilingual talk will provide insight into the changes in insurance coverage, specifically navigating New York Medicaid. Attendees will also have the opportunity to share their experiences and situations in order to best prepare for a shifting landscape. This presentation and dinner are generously sponsored by Shire. Esta charla bilingüe proveerá información sobre los cambios […]
Join us for Factor in the Family: Women and Girls Can and Do Have Hemophilia! Women with hemophilia B don't just face unique bleeding challenges - getting the right diagnosis and treatment can be an uphill battle. This program will help all community members advocate for girls and women who have a bleeding disorder, understand the […]
Ever wonder how DNA works? We’ll discuss the basics, including the ways it makes us unique, where it resides in our bodies, how it can affect our health, and the relationship between DNA and hemophilia. Recognizing that we are not all scientists, we’ll breakdown these complex elements into concepts we can all comprehend. All ages are welcome […]
