Join us on Wednesday, February 28 at 7 PM for a webinar that will transform the way you think about research and the impact it can have on your life as someone with a bleeding disorder. Dr. Jill Johnsen, a renowned physician scientist from the Washington Center for Bleeding Disorders, will take us through an […]
Join us on Rare Disease Day, Thursday, February 29 at 7 PM, for a unique and fun evening of Diamond Painting over Zoom as we celebrate the strength and resilience of our community. Just as diamonds are some of the rarest gems on earth, so too are the experiences of those living with a bleeding disorder. […]
You’re invited to the New York City Premiere of the inspirational film, Redefining Impossible: a film that highlights the stories of five athletes living with hemophilia and how they refused to […]
Join bleeding disorders advocates from across New York State for Albany Days from Saturday, March 16 to Monday, March 18. Whether you are new to advocacy, or you're an experienced advocate, […]
Join us on Thursday, March 21 at 7 PM for a webinar focusing on guiding your child through the early years of life with a bleeding disorder with an emphasis on the mental health related aspects that come along with a new diagnosis. Dr. Regina Legere-Buccellato, a Clinical Psychologist and mom of two sons with […]
Our 4th Annual In The Know Treatment Decision Making Summit will be held on Saturday, April 6 from 10 AM to 2:30 PM at the NYCHC Office (enter at 205 […]
The Hemophilia Federation of America (HFA) is heading to Indianapolis for their annual Symposium! Join them for this year’s conference from Thursday, April 11 to Sunday, April 14 at the JW Marriott Indianapolis in […]
PULSE for Bleeders (Promoting Unity, Leadership, and Support for Empowerment) is a new group in the NYCHC Community! PULSE was designed by and for teens in our community to empower […]
Join us on Sunday, April 28, from 11:30 AM to 2 PM for our Infusion Training and Lunch at the NYCHC Office (entrance is located at 205 W. 37th St., New York, […]
Bring your crew to the Zoo for a roaring good time! Join us for a fun day at the Bronx Zoo on Sunday, May 5, beginning at 11:30 AM. This event […]
