Many women who carry the hemophilia gene have the same symptoms of those with hemophilia. This retreat will focus on women who are carriers and their concerns. Sessions will be geared to learning more about your bleeding disorder and learning how to handle your bleeding disorder more effectively. Sessions will include: Listen To Your Art- […]
Ever wonder how hemophilia may impact unaffected brothers and sisters? Raising multiple kids can have plenty of ups and downs, especially if one child has a chronic condition like hemophilia. Sometimes balancing the needs of the child without hemophilia can be a challenge. This workshop empowers parents and caregivers with new tools to ensure that […]
New York City Hemophilia Chapter (NYCHC) and the Hemophilia Association of New York (HANY) are proud to present: The New York City Inhibitor Retreat Friday, May 12, 2017- Saturday, May 13, 2017 Residence Inn Times Square 1033 Avenue of the Americas, New York, NY 10018 The program will feature opportunities to: Access and discuss case […]
In 2006, a handful of New York families and friends affected by bleeding disorders went to Riverside Park and started the first Hemophilia Walk. We realized that by standing together we could make a difference for ourselves and our children. There was excitement in the air that first beautiful day, and the promise of a […]
Is health care important to you? Join NYCHC's Advocacy Committee for a night of dinner and discussion about changes in health care policy, patient impact, and what you can do […]
¡El Comité Latino de NYCHC quiere que se unan a nosotros para aprender a infundir! En un ambiente tranquilo y alentador, y con la ayuda de enfermeras, aprenderemos a infundir a nuestros hijos ya nosotros mismos. Se servirá el almuerzo. Patrocinado por Bayer Healthcare y BDRN. Este es un evento bilingüe. Registrarse para unirse a […]
Wednesday June 14, 2017 | 6:00pm-7:00pm Maggiano's Little Italy 600 Garden City Plaza Garden City, NY 11530 Finding the Positives When Living with a Bleeding Disorder We'll discuss the challenges with raising children with bleeding disorders, the roles parents take on in their children's lives, and finding positivity despite adversity. Hector Grisalez was born in […]
Thursday June 15, 2017 | 7:00pm-8:00pm Jake's Steakhouse 6031 Broadway Bronx, NY 10471 Raising Young Children with Hemophilia There are many trials and tribulations when children are first diagnosed with hemophilia. In this discussion, we'll go over tips and tricks to navigate early childhood education, 504 plans, and advocating for your family's care and wellbeing. […]
Improving Adherence During Infusions (sponsored by CSL Behring) Tuesday, June 20, 2017 7:00pm-8:00pm Join Shannon Penica Walters, a behavioral specialist and consultant, as she speaks about behavioral approaches to improve adherence during infusions. The webinar will cover 4 main strategies that can help children adhere to their treatment regimens: • Distraction • Differential positive […]
Are you a woman with a bleeding disorder, a carrier, caregiver or all of the above? We want to brunch with you! We are looking to open our programming up for women and we want to hear your ideas. Let us treat you to a 3-course dim sum brunch in Chinatown! We eat all the […]
