In 2006, a handful of New York families and friends affected by bleeding disorders went to Riverside Park and started the first Hemophilia Walk. We realized that by standing together […]
Is health care important to you? Join NYCHC's Advocacy Committee for a night of dinner and discussion about changes in health care policy, patient impact, and what you can do […]
¡El Comité Latino de NYCHC quiere que se unan a nosotros para aprender a infundir! En un ambiente tranquilo y alentador, y con la ayuda de enfermeras, aprenderemos a infundir a nuestros hijos ya nosotros mismos. Se servirá el almuerzo. Patrocinado por Bayer Healthcare y BDRN. Este es un evento bilingüe. Registrarse para unirse a […]
Wednesday June 14, 2017 | 6:00pm-7:00pm Maggiano's Little Italy 600 Garden City Plaza Garden City, NY 11530 Finding the Positives When Living with a Bleeding Disorder We'll discuss the challenges […]
Thursday June 15, 2017 | 7:00pm-8:00pm Jake's Steakhouse 6031 Broadway Bronx, NY 10471 Raising Young Children with Hemophilia There are many trials and tribulations when children are first diagnosed with hemophilia. In this discussion, we'll go over tips and tricks to navigate early childhood education, 504 plans, and advocating for your family's care and wellbeing. […]
Improving Adherence During Infusions (sponsored by CSL Behring) Tuesday, June 20, 2017 7:00pm-8:00pm Join Shannon Penica Walters, a behavioral specialist and consultant, as she speaks about behavioral approaches to improve adherence during infusions. The webinar will cover 4 main strategies that can help children adhere to their treatment regimens: • Distraction • Differential positive […]
Are you a woman with a bleeding disorder, a carrier, caregiver or all of the above? We want to brunch with you! We are looking to open our programming up […]
Dads in Action is back this summer! Catch the Brooklyn Cyclones on June 25th with other NYCHC dads! It's a chance to meet other dads in the bleeding disorders community, relax, and have a great time. Registration includes the price of food, drinks, and field box seats at MCU Park. There will be a short […]
NYCHC X LUNA PARK | FRIDAY, JULY 7 NYCHC wants YOU to join us at LUNA PARK! 3:30 PM - 6:00PM - TEENS (13-18): Form your team and collect your scavenger hunt clues. Set off into the park and complete the tasks! Then join us for a wrap-up and BBQ! Wristbands give you unlimited ride […]
NYCHC's VWD Committee invites you to join us at our next happy hour social! This time, we'll be at a rooftop bar with great city views. This is a chance to see old friends and make new ones. VWD Happy Hour 6:00pm-9:00pm 230 Fifth Ave (corner of 27th Street) New York, NY 10001 When you […]
