Thursday June 15, 2017 | 7:00pm-8:00pm Jake's Steakhouse 6031 Broadway Bronx, NY 10471 Raising Young Children with Hemophilia There are many trials and tribulations when children are first diagnosed with hemophilia. In this discussion, we'll go over tips and tricks to navigate early childhood education, 504 plans, and advocating for your family's care and wellbeing. […]
Improving Adherence During Infusions (sponsored by CSL Behring) Tuesday, June 20, 2017 7:00pm-8:00pm Join Shannon Penica Walters, a behavioral specialist and consultant, as she speaks about behavioral approaches to improve adherence during infusions. The webinar will cover 4 main strategies that can help children adhere to their treatment regimens: • Distraction • Differential positive […]
Are you a woman with a bleeding disorder, a carrier, caregiver or all of the above? We want to brunch with you! We are looking to open our programming up for women and we want to hear your ideas. Let us treat you to a 3-course dim sum brunch in Chinatown! We eat all the […]
Dads in Action is back this summer! Catch the Brooklyn Cyclones on June 25th with other NYCHC dads! It's a chance to meet other dads in the bleeding disorders community, relax, and have a great time. Registration includes the price of food, drinks, and field box seats at MCU Park. There will be a short […]
NYCHC X LUNA PARK | FRIDAY, JULY 7 NYCHC wants YOU to join us at LUNA PARK! 3:30 PM - 6:00PM - TEENS (13-18): Form your team and collect your scavenger hunt clues. Set off into the park and complete the tasks! Then join us for a wrap-up and BBQ! Wristbands give you unlimited ride […]
NYCHC's VWD Committee invites you to join us at our next happy hour social! This time, we'll be at a rooftop bar with great city views. This is a chance to see old friends and make new ones. VWD Happy Hour 6:00pm-9:00pm 230 Fifth Ave (corner of 27th Street) New York, NY 10001 When you […]
Looking for insights from someone with experience on ELOCTATE? MyELOCTATE Peers™ are patients and caregivers who have treatment experience with ELOCTATE and want to give you a look into their life since making the change. Join us for an interactive educational experience and meet a MyELOCTATE Peer™— a patient or caregiver who will share what it’s been […]
El Comité Latino NYCHC quiere celebrar el verano con ustedes! Únase a nosotros en la Gran Colina (Great Hill) en Central Park el domingo 6 de agosto a las 12pm (busca los globos). Vamos a comer, reír, y tener un gran día en el parque. Se proporcionará alimentos, pero traiga algo para comer o beber […]
Join us for dinner and a presentation on problem-solving approaches to the day-to-day challenges posed by living with hemophilia! Being Prepared for a Hemophilia Emergency with Jennifer Harris, RN, BSN Wednesday, August 9 | 6:30pm Broadway Bistro 3 South Broadway Nyack, NY 10960 Please feel free to extend this invitation to a anyone whom you think […]
Have you ever wanted to explore the subway system OUTSIDE of the train car? On August 12th, you can! We'll meet outside of the 4/5/6 Brooklyn Bridge-City Hall station and head down together. This private 2-hour tunnel tour for teens will take us through to the old City Hall station, a piece of living NYC […]
