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HFA Symposium

Rhode Island Convention Center 1 Sabin Street, Providence, Rhode Island 1 Sabin Street, Providence, Rhode Island

Symposium is an annual community-centered educational event that draws hundreds of members from the bleeding disorders community together to share information, learn new advancements, and build a network of support! Each year, we offer travel scholarships to first time attendees who need financial assistance. NYCHC will be joining others in the community in Providence, RI […]

NYCHC Chapter Kids Pool Party

Dwight School Athletic Center 2116 1st Avenue, New York, New York

NYCHC is having a Chapter Kids Pool Party this Spring Break! This event will consist of: 1 hour of lifeguard-supervised swim instruction/play 1 hour pizza lunch and craft session 1 hour movie screening This is a F R E E event, however, advanced registration is required. We are also asking that only kids ages 7-13 […]

Spring Event

Bronx Zoo 2300 Southern Boulevard, Bronx, New York

This year, we're returning to the Bronx Zoo Sunday, April 23, 2017 at 11:00am. The event ticket includes access to the entire zoo;  a delicious barbecue lunch including burgers, hot dogs, sides, and vegetarian options; a wide range of rides and attractions; and more! For details on how to register, visit: bit.ly/2017springevent.

Carriers Retreat (BDANENY)

The Carey Conference Center 63 Huyck Rd, Rensselaerville, NY

Many women who carry the hemophilia gene have the same symptoms of those with hemophilia. This retreat will focus on women who are carriers and their concerns. Sessions will be geared to learning more about your bleeding disorder and learning how to handle your bleeding disorder more effectively. Sessions will include: Listen To Your Art- […]

Spotlight on Unaffected Siblings with Bioverativ

Johnathan's Restaurant 2499 Jericho Turnpike, New Hyde Park, NY

Ever wonder how hemophilia may impact unaffected brothers and sisters? Raising multiple kids can have plenty of ups and downs, especially if one child has a chronic condition like hemophilia. Sometimes balancing the needs of the child without hemophilia can be a challenge. This workshop empowers parents and caregivers with new tools to ensure that […]

NYC Inhibitor Retreat

Residence Inn New York/Times Square 1033 Avenue of the Americas , New York, New York

New York City Hemophilia Chapter (NYCHC) and the Hemophilia Association of New York (HANY) are proud to present: The New York City Inhibitor Retreat Friday, May 12, 2017- Saturday, May 13, 2017 Residence Inn Times Square 1033 Avenue of the Americas, New York, NY 10018 The program will feature opportunities to: Access and discuss case […]

NYC Hemophilia Walk 2017

Riverside Park 6681 Riverside Dr, New York, New York

In 2006, a handful of New York families and friends affected by bleeding disorders went to Riverside Park and started the first Hemophilia Walk. We realized that by standing together […]

Advocacy Dinner + Discussion

The Liberty NYC 29 West 35th Street, New York, NY, United States

Is health care important to you? Join NYCHC's Advocacy Committee for a night of dinner and discussion about changes in health care policy, patient impact, and what you can do to help protect the bleeding disorders community. This is a free, all ages event. Wednesday, June 7, 2017 7:00PM-10:00PM The Liberty NYC 29 West 35th […]

Charla de infusión bilingüe/ Bilinual Infusion Workshop

Residence Inn New York/Times Square 1033 Avenue of the Americas , New York, New York

¡El Comité Latino de NYCHC quiere que se unan a nosotros para aprender a infundir! En un ambiente tranquilo y alentador, y con la ayuda de enfermeras, aprenderemos a infundir a nuestros hijos ya nosotros mismos. Se servirá el almuerzo. Patrocinado por Bayer Healthcare y BDRN. Este es un evento bilingüe. Registrarse para unirse a […]

Staying Positive and Raising Children with Bleeding Disorders – Garden City

Maggiano's Little Italy 600 Garden City Plaza, Garden City, New York

Wednesday June 14, 2017 | 6:00pm-7:00pm Maggiano's Little Italy 600 Garden City Plaza Garden City, NY 11530 Finding the Positives When Living with a Bleeding Disorder We'll discuss the challenges with raising children with bleeding disorders, the roles parents take on in their children's lives, and finding positivity despite adversity. Hector Grisalez was born in […]

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