NHF’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. Each year, roughly 400 volunteer advocates from 45 states come together to meet with legislators and staff to discuss federal funding for bleeding disorder programs and support policies that increase affordability of coverage […]
Join us for an educational dinner on Monday, March 13 at 6:30 PM at Market Table (54 Carmine St., New York, NY 10014). In addition to enjoying an incredible meal, attendees will also […]
A nuestras familias latinas las invitamos a participar en una presentación educativa acompañada por una deliciosa cena gratuita, completamente en español el lunes 13 de marzo a las 6:30 p. m. en […]
Join the New York State Bleeding Disorders Coalition for Albany Days as advocates from all over New York State mobilize and advocate in support of several key bills. Individuals and families are encouraged to participate in this legislative day. This will take place from Saturday, March 18 to Monday, March 20. Apply Here
Our 3rd Annual In The Know Treatment Decision Making Summit will be held on Sunday, April 2 from 10 AM to 1 PM at the NYCHC Office (enter at 205 W. 37th St., New York, NY 10018). With treatment options changing rapidly for our community, it is extremely important for patients and families to stay […]
The Hemophilia Federation of America is heading to Orlando for what is shaping up to be their biggest and best Symposium yet from April 13 to April 16, 2023. They will have dozens of sessions for blood brothers, blood sisters, children, parents, caregivers and more, along with great opportunities to connect with the friends you […]
Join us on Monday, April 24, from 6:30 PM to 8:30 PM to celebrate World Hemophilia Day! All community members are invited to join us for dinner, followed by an empowering and educational experience through Sanofi’s One Family program: Sharing the Power of Protection. With the right information, the global hemophilia community can take steps […]
Join us on Saturday, April 29, from 11 AM to 3 PM for a fun-filled day of bowling, lunch and an educational presentation on Long Island. Don't miss this fantastic opportunity to have a great time and make new friends with other teenagers and families in the bleeding disorders community. Part 1: Teenagers Only (ages […]
Bring your crew to the Zoo for a roaring good time! Join us for a fun day at the Bronx Zoo on Sunday, April 30, beginning at 11:30 AM. This event will allow families to come together to meet one another and connect in a relaxed and laid-back environment. Agenda Overview: 11:30 AM: Arrival & Check-In | […]
Join us on Sunday, May 7, from 11:30 AM to 2 PM for our Infusion Training and Lunch. This will be held at the NYCHC Office. The entrance is located at 205 W. 37th St., New York, NY 10018. When you arrive, please join us on the 8th Floor. Lunch will also be provided. This small gathering […]
