Teens in our community are launching a group to empower other 13-19 year olds to gain independence, improve their collaboration, and cultivate their leadership skills by embracing the bleeding disorders […]
Almuerzo con actividad manual para el dia de San Valentín Invitamos a las mamás latinas con un desorden de coagulación a disfrutar de un almuerzo y preparar una Corona para el día de […]
Invitamos a los adultos de nuestra comunidad latina con un desorden de coagulación a disfrutar de 2 sesiones educativas con un almuerzo el sábado 10 de Febrero en el restaurante […]
Join us on Wednesday, February 28 at 7 PM for a webinar that will transform the way you think about research and the impact it can have on your life […]
Join us on Rare Disease Day, Thursday, February 29 at 7 PM, for a unique and fun evening of Diamond Painting over Zoom as we celebrate the strength and resilience of […]
You’re invited to the New York City Premiere of the inspirational film, Redefining Impossible: a film that highlights the stories of five athletes living with hemophilia and how they refused to […]
Join bleeding disorders advocates from across New York State for Albany Days from Saturday, March 16 to Monday, March 18. Whether you are new to advocacy, or you're an experienced advocate, […]
Join us on Thursday, March 21 at 7 PM for a webinar focusing on guiding your child through the early years of life with a bleeding disorder with an emphasis […]
Our 4th Annual In The Know Treatment Decision Making Summit will be held on Saturday, April 6 from 10 AM to 2:30 PM at the NYCHC Office (enter at 205 W. 37th St., New York, NY 10018). With treatment options changing rapidly for our community, it is extremely important for patients and families to stay […]
The Hemophilia Federation of America (HFA) is heading to Indianapolis for their annual Symposium! Join them for this year’s conference from Thursday, April 11 to Sunday, April 14 at the JW Marriott Indianapolis in Indianapolis, Indiana. They will have dozens of sessions for blood brothers, blood sisters, children, parents, caregivers and more, along with great opportunities to connect with […]
