Teens in our community are launching a group to empower other 13-19 year olds to gain independence, improve their collaboration, and cultivate their leadership skills by embracing the bleeding disorders community in our area. This Saturday, January 13 at 11 AM, teens are invited to join us for a pizza party at the NYCHC Office […]
Almuerzo con actividad manual para el dia de San Valentín Invitamos a las mamás latinas con un desorden de coagulación a disfrutar de un almuerzo y preparar una Corona para el día de San Valentín el sábado 20 de Enero en el restaurante "Harvest Kitchen' (269 Columbus Ave, NY NY) de las 11:15 am a las 12:30pm. Este evento es patrocinado […]
Invitamos a los adultos de nuestra comunidad latina con un desorden de coagulación a disfrutar de 2 sesiones educativas con un almuerzo el sábado 10 de Febrero en el restaurante […]
Join us on Wednesday, February 28 at 7 PM for a webinar that will transform the way you think about research and the impact it can have on your life as someone with a bleeding disorder. Dr. Jill Johnsen, a renowned physician scientist from the Washington Center for Bleeding Disorders, will take us through an […]
Join us on Rare Disease Day, Thursday, February 29 at 7 PM, for a unique and fun evening of Diamond Painting over Zoom as we celebrate the strength and resilience of our community. Just as diamonds are some of the rarest gems on earth, so too are the experiences of those living with a bleeding disorder. […]
You’re invited to the New York City Premiere of the inspirational film, Redefining Impossible: a film that highlights the stories of five athletes living with hemophilia and how they refused to let their bleeding disorder stop them from participating in the activities they love! Join us for this VIP Experience at Angelika Film Center (18 W. Houston St), […]
Join bleeding disorders advocates from across New York State for Albany Days from Saturday, March 16 to Monday, March 18. Whether you are new to advocacy, or you're an experienced advocate, you can help us make a difference! This three-day program will feature a fun and interactive advocacy training on Saturday and Sunday followed by meetings […]
Join us on Thursday, March 21 at 7 PM for a webinar focusing on guiding your child through the early years of life with a bleeding disorder with an emphasis on the mental health related aspects that come along with a new diagnosis. Dr. Regina Legere-Buccellato, a Clinical Psychologist and mom of two sons with […]
Our 4th Annual In The Know Treatment Decision Making Summit will be held on Saturday, April 6 from 10 AM to 2:30 PM at the NYCHC Office (enter at 205 W. 37th St., New York, NY 10018). With treatment options changing rapidly for our community, it is extremely important for patients and families to stay […]
The Hemophilia Federation of America (HFA) is heading to Indianapolis for their annual Symposium! Join them for this year’s conference from Thursday, April 11 to Sunday, April 14 at the JW Marriott Indianapolis in Indianapolis, Indiana. They will have dozens of sessions for blood brothers, blood sisters, children, parents, caregivers and more, along with great opportunities to connect with […]
