Events

Join the New York State Bleeding Disorders Coalition for Albany Days as advocates from all over New York State mobilize and advocate in support of several key bills. Individuals and families are […]

We’re excited to introduce you to Courageous Conversations: a weekly chat to allow you to open up about your struggles, make connections, and feel supported. Every Thursday at 7 PM, the group will meet weekly and will be run by Lisa Schoenfeld, a mom in the New York City bleeding disorders community. All conversations will remain […]

We’re excited to introduce you to Courageous Conversations: a weekly chat to allow you to open up about your struggles, make connections, and feel supported. Every Thursday at 7 PM, the group will meet weekly and will be run by Lisa Schoenfeld, a mom in the New York City bleeding disorders community. All conversations will remain […]

Join us on Sunday, April 10 from 10:30 AM to 4:00 PM as we host: In The Know: Treatment Decision Making Summit at the New York Marriott Downtown. With treatment options changing rapidly for our community, it is extremely important for patients and families to stay informed of the latest options available to them. This Summit will […]

We’re excited to introduce you to Courageous Conversations: a weekly chat to allow you to open up about your struggles, make connections, and feel supported. Every Thursday at 7 PM, the group will meet weekly and will be run by Lisa Schoenfeld, a mom in the New York City bleeding disorders community. All conversations will remain […]

Shine those boots and saddle up! The Hemophilia Federation of America is heading to San Antonio for what is shaping up to be their biggest and best Symposium yet from April 20 to April 23, 2022. Learn More

We’re excited to introduce you to Courageous Conversations: a weekly chat to allow you to open up about your struggles, make connections, and feel supported. Every Thursday at 7 PM, the […]

We’re excited to introduce you to Courageous Conversations: a weekly chat to allow you to open up about your struggles, make connections, and feel supported. Every Thursday at 7 PM, the […]

On Saturday, April 30 from 4:30 PM to 6:30 PM, we will host a ceramic pottery painting session at Plaster Palace Pottery in Larchmont, NY! The first half of this event will feature […]

The World Federation of Hemophilia's 2022 World Congress is less than one month away, from May 8 to May 11 in Montreal, Canada!  The World Congress offers a unique opportunity to meet your global peers, learn from leading experts and hear firsthand about cutting-edge research.  The event is hybrid, so whether you make the short […]