Events

We’re excited to introduce you to Courageous Conversations: a weekly chat to allow you to open up about your struggles, make connections, and feel supported. Every Thursday at 7 PM, the […]

We’re excited to introduce you to Courageous Conversations: a weekly chat to allow you to open up about your struggles, make connections, and feel supported. Every Thursday at 7 PM, the […]

Join us on Sunday, April 10 from 10:30 AM to 4:00 PM as we host: In The Know: Treatment Decision Making Summit at the New York Marriott Downtown. With treatment options changing […]

We’re excited to introduce you to Courageous Conversations: a weekly chat to allow you to open up about your struggles, make connections, and feel supported. Every Thursday at 7 PM, the […]

Shine those boots and saddle up! The Hemophilia Federation of America is heading to San Antonio for what is shaping up to be their biggest and best Symposium yet from […]

We’re excited to introduce you to Courageous Conversations: a weekly chat to allow you to open up about your struggles, make connections, and feel supported. Every Thursday at 7 PM, the group will meet weekly and will be run by Lisa Schoenfeld, a mom in the New York City bleeding disorders community. All conversations will remain […]

We’re excited to introduce you to Courageous Conversations: a weekly chat to allow you to open up about your struggles, make connections, and feel supported. Every Thursday at 7 PM, the group will meet weekly and will be run by Lisa Schoenfeld, a mom in the New York City bleeding disorders community. All conversations will remain […]

On Saturday, April 30 from 4:30 PM to 6:30 PM, we will host a ceramic pottery painting session at Plaster Palace Pottery in Larchmont, NY! The first half of this event will feature an interactive conversation about trusting your parental instincts when it comes to your child’s health. A local mom of a child with hemophilia will share […]

The World Federation of Hemophilia's 2022 World Congress is less than one month away, from May 8 to May 11 in Montreal, Canada!  The World Congress offers a unique opportunity to meet your global peers, learn from leading experts and hear firsthand about cutting-edge research.  The event is hybrid, so whether you make the short […]

In the 1980s, many bleeding disorders community members contracted HIV and Hepatitis C after injecting contaminated anti-hemophilic clotting factor into their bodies. It is estimated that nearly ten thousand people with Hemophilia contracted HIV (and Hepatitis C) during this time period. In honor of our community members who have passed away and those who still struggle with […]